Bioidentical Hormone Replacement Therapy

How much does treatment cost for someone who has Prader-Willi Syndrome?

Treatments would include hormone replacements, growth hormones, speech therapist, physical therapy, developmental therapy, and specialized treatment facilities to live at once they are an adult. THANKS!

The cost of HGH alone is between $10,000 and $30,000 per year; it has become a cornerstone of early care as it reduces fat ratio and builds muscle in addition to achieving more normal height. Not all PWS patients need physical therapy or speech therapy, etc., but if needed those costs can add up to $15,000 (or more) per year for each specialist therapy. Nutritional counseling is usually needed to help the family provide low calorie foods in adequate quantities to satisfy the patient’s food cravings. This may cost roughly $5,000 per year. There are very few facilities that provide specialized life care for PWS patients. I worked at one, but honestly have no idea of the yearly cost. My best guess… $50,000 to $80,000 per year?

There are many other unique medical and social needs for PWS patients. Many have type II diabetes and related complications. They often suffer from sleep apnea and need sleep studies and require CPAP or BIPAP(assisted breathing machines) at night. Life expectancy is not shortened if the patients weight is controlled, otherwise health issues related to obesity can shorten a PWS patient’s life expectancy.

Jeff Life, MD – Cenegenics, Hormone Replacement Therapy

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